My Quest for My MS

He informed me, I had primary progressive MS instead of relapsing-remitting MS.

Saying “Yes” Until I Can’t

Have I taken on too much? Maybe, but it’s doable because, for now, MS is not making my working life impossible.

A Man Gets To Know His Limitations­ (With Apologies To Clint Eastwood)

Playing the drums, which had been effortless and fluid, has become decidedly effortful and deliberate.

MS Has Changed Me

I’m a little off and a bit quirky, but those are the things that make me special, authentic and help me inspire others.

I’m Going to Let You in on a Secret

When I made the decision to start using a wheelchair full time, it made a significant improvement in the quality of my life and in the lives of my husband and kids.

Latest Blogs

A Reflection 1 Year in: MS and COVID-19

During 2020, we were sometimes confined and isolated from friends and love ones; however, we… Read More

Impacting MS Patients in Puerto Rico

There are only about 113 neurologists that care for about 3.3 million people in Puerto… Read More

Accessibility Claps and Slaps

I often find myself doing accessibility assessments. These may range from big, obvious things to… Read More

3 Ways My Tired Is Different from Your Tired

The one thing I find the most annoying though is how other people see fatigue…. Read More

“Are You Fine?”

I’d love to link arms with you on your journey; we no longer need to… Read More

6 Things You Need to Know About MS and the COVID-19 Vaccines

The National MS Society convened a group of MS experts to develop guidance so that… Read More

Tongue-Tied: 4 Things to Say

Since people don’t generally have a firm grasp of the disease, the comments we receive… Read More

Unexpected Reality

My mindset has changed and matured to accept the reality and try my hardest to… Read More

My Life in Chronic-logical Order

My hope is that you will find the same freedom in creating and protecting the… Read More

MS diagnosis

Grief and Silver Linings: An MS Diagnosis

I would never have wanted this, but that is how life goes, isn’t it? You… Read More

Not Just Clumsy

Suddenly, the future that I’d imagined for myself no longer exists. I need to begin… Read More

The Five Worst Things I Have Done Since Being Diagnosed with MS

I can admit to having done some pretty dumb things in my life. A lot… Read More

Do You Panic in the Sun?

Like most people with MS, I am heat intolerant. Many of my symptoms get much… Read More

MS Dysfunction of the Bowel

The Unspeakable Bits; From A Life With MS Rounding out our discussion of the “plumbing… Read More

Sex & MS

Like other parts of our “healthy life,” multiple sclerosis can and does take its toll… Read More

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