You Can Run, but You Can’t Hide

When I was first diagnosed about 30 years ago, MS was some mysterious, archaic, incurable disease that not many had heard of, let alone understood. When my doctor told me good luck and sent me on my way, I knew it was my job to bury it and never look back. After all, if I…

Where Have All My Friends Gone?

Maybe someday your old friends will come back around. But until then, keep advocating for yourself and your health.

My Quest for My MS

He informed me, I had primary progressive MS instead of relapsing-remitting MS.

Saying “Yes” Until I Can’t

Have I taken on too much? Maybe, but it’s doable because, for now, MS is not making my working life impossible.

A Man Gets To Know His Limitations­ (With Apologies To Clint Eastwood)

Playing the drums, which had been effortless and fluid, has become decidedly effortful and deliberate.

Latest Blogs

MS Has Changed Me

I’m a little off and a bit quirky, but those are the things that make… Read More

I’m Going to Let You in on a Secret

When I made the decision to start using a wheelchair full time, it made a… Read More

A Reflection 1 Year in: MS and COVID-19

During 2020, we were sometimes confined and isolated from friends and love ones; however, we… Read More

Impacting MS Patients in Puerto Rico

There are only about 113 neurologists that care for about 3.3 million people in Puerto… Read More

Accessibility Claps and Slaps

I often find myself doing accessibility assessments. These may range from big, obvious things to… Read More

3 Ways My Tired Is Different from Your Tired

The one thing I find the most annoying though is how other people see fatigue…. Read More

“Are You Fine?”

I’d love to link arms with you on your journey; we no longer need to… Read More

6 Things You Need to Know About MS and the COVID-19 Vaccines

The National MS Society convened a group of MS experts to develop guidance so that… Read More

Tongue-Tied: 4 Things to Say

Since people don’t generally have a firm grasp of the disease, the comments we receive… Read More

Unexpected Reality

My mindset has changed and matured to accept the reality and try my hardest to… Read More

“Are You Fine?”

I’d love to link arms with you on your journey; we no longer need to… Read More

6 Things You Need to Know About MS and the COVID-19 Vaccines

The National MS Society convened a group of MS experts to develop guidance so that… Read More

Tongue-Tied: 4 Things to Say

Since people don’t generally have a firm grasp of the disease, the comments we receive… Read More

Unexpected Reality

My mindset has changed and matured to accept the reality and try my hardest to… Read More

My Life in Chronic-logical Order

My hope is that you will find the same freedom in creating and protecting the… Read More

MS diagnosis

Grief and Silver Linings: An MS Diagnosis

I would never have wanted this, but that is how life goes, isn’t it? You… Read More

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